THE ACPA TEN STEPS

STARTS HERE

It was because of you my readers and fellow pain warriors asking of me to share with you more on how I managed to regain much of my functionality that After CRPS came to fruition, designed for me to journal my journey forward, to understand what got me to where I am today.

paincostssm1As I refill my pitcher this time I’ll blog the path that brought my pain from an 8+ daily to a 3.5 daily starting with the ACPA recommendations of Ten Steps to Better Coping with Pain. As I revisit the processes and incorporate the recommendations of Doctors’ such as Dr Getson and other professionals who recommend non-toxic living, it will be up to you how to share in the journey. Just know that removing the toxins from your world will help you to feel better even if you are not suffering with neurological pain.

Not everyone will receive the same benefits as I or another has. I was not bed bound for months on end or in a wheelchair when I started this either and it is from my situation which I have a perspective and my alone. However, please do not allow this to discount you form modifying the process and finding a level of relief you have been missing.

Remember, that which we project starts from within and how we view our pain, the power of words, understanding the effects of negativity thinking and negative people on ourselves as much as the poisons in our food, our air and the products we put on our skin to feel better and look younger.

I look forward to sharing with you what I have learned and what I will be learning along the way as we discover new things together.

Understand: The Flu

What is the flu?

FluWeeklyReportThe flu is caused by an influenza virus and is a contagious respiratory illness which spreads easily making many people sick around the world. According to the Mayo Clinic, influenza is a viral infection that attacks your respiratory system which infects the nose, throat, and lungs. Its effect can cause mild to severe illness and has the potential to lead to death.

The flu is different from a cold and usually comes on suddenly. You may have some or all of the following symptoms:

  • Fever* or feeling feverish/chills
  • Muscle or body aches
  • Runny or stuffy nose
  • Fatigue (tiredness)
  • Headaches
  • A sore throat
  • A cough

* It’s important to note that not everyone with flu will have a fever.

Generally, most who get the influenza virus will recover within several days to less than two weeks, however, some people will develop complications. A wide range of complications can be caused by influenza virus infection of the upper respiratory tract (nasal passages, throat) and lower respiratory tract (lungs). While anyone may become moderately or even severely ill, the individuals most likely to experience a severe case would be young children, adults aged 65 years and older with a compromised immune system, to begin with may potentially require hospitalization. For example, individuals who are afflicted with asthma may experience a worsening of this condition triggered by the flu. The Mayo Clinic recommends if you have flu symptoms and are at risk of complications, see your doctor right away.

How is the seasonal flu spread?

The influenza viruses are airborne, meaning when someone with the infection coughs, sneezes or talks the droplets travel through the air. You can inhale the droplets directly, or you can pick up the germs from an object — such as a door handle or an ATM keyboard — and then transferring them to your eyes, nose or mouth.

The contagious stage of the illness is approximately a day before symptoms first appear for a duration of 5 to 10 days after the symptoms appearing. It needs to be understood that individuals with a weakened immune system are most generally will be contagious for a longer period of time.

Although you develop antibodies against flu viruses you’ve encountered in the past through direct exposure or through a vaccine the antibodies present cannot protect you from new influenza subtypes. These subtypes have a very different immunological from what you have been exposed to before. Since a flu pandemic is caused by a new virus, the seasonal flu vaccine probably won’t protect you from the flu. One should ask what can I do to prepare for the flu season?

Take Action!

  • Take steps to stop the spread of germs that can cause the flu and other illnesses:
  • Avoid close contact with sick people.
  • Stay home from work or school if you get sick. Staying home (except to go to the doctor) for at least 24 hours after your fever is gone without the use of a fever-reducing medicine.cdc_cough_noLogo
  • Cover your nose and mouth with a tissue when you cough or sneeze. Throw the tissue in the trash.
  • Wash your hands often with soap and water. If soap and water aren’t available, use a hand sanitizer.
  • Don’t touch your eyes, nose, and mouth. This helps keep germs out of your body.
  • It’s suggested you prepare for the flu season like you would prepare for any emergency where you may be required to stay home for an extended period of time.
  • Gather supplies, like extra food, water, and medicine.
  • Make an emergency plan for your Family.
  • Write down important health information for each member of your family. health information sheet [PDF – 29 KB]
  • Make a list of emergency contact information. Include the phone numbers for your local hospital, doctor, school, and other emergency contacts. family emergency plan [PDF – 520 KB].
  • Start gathering emergency supplies and put them in a safe place. Keep enough water, food, medicine, and other supplies to last 2 weeks. emergency supply kit-check list [PDF – 348 KB]
If I have an autoimmune related condition should I get the flu shot?

We recommend you visit our FAQ page where we addressed the impact of vaccines upon the immune system. From there we hope you are able to draw your own conclusion as to the safety of the influenza vaccine.

Cited Sources:

“Allergy | Definition of Allergy in English by Oxford Dictionaries.” Oxford Dictionaries | English, Oxford Dictionaries, en.oxforddictionaries.com/definition/allergy.

“Allergic Reaction | AAAAI.” The American Academy of Allergy, Asthma & Immunology, http://www.aaaai.org/conditions-and-treatments/conditions-dictionary/allergic-reaction.

Fasano, Mary Beth. “What Is an Allergic Reaction?” AAAAI, The American Academy of Allergy, Asthma & Immunology | AAAAI, 27 June 2013, aaaai.execinc.com/videos/conditions-and-treatments/allergy-videos/what-is-an-allergic-reaction.asp.

Posthumus, Jonathon, et al. “Initial Description of Pork-Cat Syndrome…” The Journal of Allergy and Clinical Immunology, U.S. National Library of Medicine, Mar. 2013, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3594363/.

“Food Allergy.” National Institute of Allergy and Infectious Diseases, U.S. Department of Health and Human Services, 21 Dec. 2017, http://www.niaid.nih.gov/diseases-conditions/food-allergy.

“Food Allergy.” Mayo Clinic, Mayo Foundation for Medical Education and Research, 2 May 2017, http://www.mayoclinic.org/diseases-conditions/food-allergy/symptoms-causes/syc-20355095.

“Anaphylaxis.” Mayo Clinic, Mayo Foundation for Medical Education and Research, 14 Feb. 2017, http://www.mayoclinic.org/diseases-conditions/anaphylaxis/symptoms-causes/syc-20351468.

Commins, Scott P., and Thomas A. E. Platts-Mills. “Delayed Anaphylaxis to Red Meat in Patients with IgE Specific for Galactose Alpha-1,3-Galactose (Alpha-Gal).” Current Allergy and Asthma Reports, U.S. National Library of Medicine, Feb. 2013, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3545071/.

Mamikoglu, B. “Beef, Pork, and Milk Allergy (Cross-Reactivity with Each Other and Pet Allergies).” Otolaryngology-Head and Neck Surgery: Official Journal of American Academy of Otolaryngology-Head and Neck Surgery., U.S. National Library of Medicine, Oct. 2005, www.ncbi.nlm.nih.gov/pubmed/16213925/.

Allergic to what? PORK?!?

The Oxford Dictionary defines allergy as a damaging immune response to a substance. The American Academy of Allergy, Asthma & Immunology (AAAAI), a professional organization with over 7,000 members in the United States, Canada, along with 72 other countries explains that an allergic reaction occurs when the immune system overreacts to a harmless substance known as an allergen or antigen. According to Clinical Professor of Internal Medicine and Immunology Clinical Professor of Pediatrics Mary Beth Fasano, MD, MSPH, and member of the AAAAI, not everyone exposed to a substance will develop a sensitivity or allergy to the allergen or antigen they are exposed to. When a reaction does occur, it could manifest in a number of ways.

AllergenFree

Signs and symptoms of an allergic reaction may include any combination of the following:

  • eyes: red, itchy, swollen, watery;
  • nose: sneezing, aching, stuffy runny and/or congested with post nasal drip nose, or a sore throat, hoarseness of voice, headaches;
  • lungs: coughing, wheezing, tightness in chest or shortness of breath;
  • inflammatory Response: skin irritation, redness, itching, swelling, blistering, weeping, crusting, rash, eruptions, hives (itchy bumps or welts) swelling of the face, neck, eyelids, lips, tongue;
  • gastrointestinal Distress: bloating, nausea, emesis (vomiting), diarrhea, mild to severe pain;
  • other: fatigue, malaise, dizzy or lightheadedness;
  • just to name a few…
An allergen could be as common as hay fever or a reaction to a caustic substance known to cause skin irritation when it comes into contact with skin or a bit more unusual such as pork. Yes, pork. Known in the medical community as Pork-Cat Syndrome. Sensitivity to pork does not show early in life with most reports of individual older than age 8 along with the majority being adults or teens. It is believed the sensitization to cats develops over time. It is recommended that patients who are known to have pet allergies may need to be screened for meat and milk allergy.
The Mayo Clinic states: Anaphylaxis is a severe, potentially life-threatening allergic reaction. It can occur within seconds or minutes of exposure to something you’re allergic to, such as peanuts or bee stings. Similar to an allergic reaction, anaphylaxis causes your immune system to release a flood of chemicals the difference is that anaphylaxis can cause you to go into shock. When the body goes into shock the body’s blood pressure drops suddenly moreover your airways narrow, consequently making it impossible to breathe.
Signs and symptoms include:
  • low blood pressure (hypotension) a rapid, weak pulse;
  • constriction of your airways, a swollen tongue, or throat, which can cause wheezing and trouble breathing;
  • a skin rash including hives, itching, flushed or pale skin;
  • nausea and vomiting;
  • dizziness or fainting.
 Anaphylaxis requires immediate emergency care, dial 911. If an anaphylaxis attack is not treated right away, it can be deadly. Seek emergency medical help if you, your child or someone else you’re with has a severe allergic reaction. Don’t wait to see if the symptoms go away.

In closing, As time passes, doctors, specialists, clinicians, researchers and patients alike are finding a correlation between many of the disease, we once believed we understood, allergic reactions, the autoimmune system and the pain discomfort we have come to learn to live with. When watching what we ingest be it through oral ingestion, breathing it in or absorbing it through our skin is the key to feeling even a little bit better isn’t it worth it?

Cited Sources:

“Allergy | Definition of Allergy in English by Oxford Dictionaries.” Oxford Dictionaries | English, Oxford Dictionaries, en.oxforddictionaries.com/definition/allergy.

“Allergic Reaction | AAAAI.” The American Academy of Allergy, Asthma & Immunology, http://www.aaaai.org/conditions-and-treatments/conditions-dictionary/allergic-reaction.

Fasano, Mary Beth. “What Is an Allergic Reaction?” AAAAI, The American Academy of Allergy, Asthma & Immunology | AAAAI, 27 June 2013, aaaai.execinc.com/videos/conditions-and-treatments/allergy-videos/what-is-an-allergic-reaction.asp.

Posthumus, Jonathon, et al. “Initial Description of Pork-Cat Syndrome…” The Journal of Allergy and Clinical Immunology, U.S. National Library of Medicine, Mar. 2013, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3594363/.

“Food Allergy.” National Institute of Allergy and Infectious Diseases, U.S. Department of Health and Human Services, 21 Dec. 2017, http://www.niaid.nih.gov/diseases-conditions/food-allergy.

“Food Allergy.” Mayo Clinic, Mayo Foundation for Medical Education and Research, 2 May 2017, http://www.mayoclinic.org/diseases-conditions/food-allergy/symptoms-causes/syc-20355095.

“Anaphylaxis.” Mayo Clinic, Mayo Foundation for Medical Education and Research, 14 Feb. 2017, http://www.mayoclinic.org/diseases-conditions/anaphylaxis/symptoms-causes/syc-20351468.

Commins, Scott P., and Thomas A. E. Platts-Mills. “Delayed Anaphylaxis to Red Meat in Patients with IgE Specific for Galactose Alpha-1,3-Galactose (Alpha-Gal).” Current Allergy and Asthma Reports, U.S. National Library of Medicine, Feb. 2013, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3545071/.

Mamikoglu, B. “Beef, Pork, and Milk Allergy (Cross-Reactivity with Each Other and Pet Allergies).” Otolaryngology-Head and Neck Surgery: Official Journal of American Academy of Otolaryngology-Head and Neck Surgery., U.S. National Library of Medicine, Oct. 2005, http://www.ncbi.nlm.nih.gov/pubmed/16213925/.

Understanding: Seasonal Flu

What is a flu pandemic?

The flu is caused by an influenza virus is a contagious respiratory illness which spreads easily making many people sick around the world. According to the Mayo Clinic, influenza is a viral infection that attacks your respiratory system which infects the nose, throat, and lungs.  Its effect can cause mild to severe illness and has the potential to lead to death.

The flu is different from a cold and usually comes on suddenly. You may have some or all of the following symptoms:

FluWeeklyReport

  • Fever* or feeling feverish/chills
  • Muscle or body aches
  • Runny or stuffy nose
  • Fatigue (tiredness)
  • Headaches
  • Sore throat
  • Cough

* It’s important to note that not everyone with flu will have a fever.

Generally, most who get the influenza virus will recover within several days to less than two weeks, however, some people will develop complications. A wide range of complications can be caused by influenza virus infection of the upper respiratory tract (nasal passages, throat) and lower respiratory tract (lungs). While anyone can get sick with flu and become severely ill, some people are more likely to experience severe flu illness are young children, adults aged 65 years and older, pregnant women, and people with certain chronic medical conditions are among those groups of people who are at high risk of serious flu complications, potentially requiring hospitalization. For example, people with asthma may experience asthma attacks while they have the flu, and people with chronic heart disease may experience a worsening of this condition triggered by flu. The Mayo Clinic recommends if you have flu symptoms and are at risk of complications, see your doctor right away.

How is the seasonal flu spread?

Flu viruses travel through the air in droplets when someone with the infection coughs, sneezes or talks. You can inhale the droplets directly, or you can pick up the germs from an object — such as a door handle or an ATM keyboard — and then transferring them to your eyes, nose or mouth.

People with the virus are likely contagious from the day or so before symptoms first appear until about five days after symptoms begin, though sometimes people are contagious for as long as 10 days after symptoms appear. Children and people with weakened immune systems may be contagious for a slightly longer time.

Although you develop antibodies against flu viruses you’ve encountered in the past through direct exposure or through a vaccine the antibodies present can not protect you from new influenza subtypes. They are very different immunologically from what you been exposed to before. Since a flu pandemic is caused by a new virus, the seasonal flu vaccine probably won’t protect you from the flu. One should ask what can I do to prepare for the flu season?

Take Action!

Take steps to stop the spread of germs that can cause the flu and other illnesses:cdc_cough_noLogo

  • Avoid close contact with sick people.
  • Stay home from work or school if you get sick. Stay home (except to go to the doctor) for at least 24 hours after your fever is gone. Your fever should be gone without the use of a fever-reducing medicine.
  • Cover your nose and mouth with a tissue when you cough or sneeze. Throw the tissue in the trash.
  • Wash your hands often with soap and water. If soap and water aren’t available, use a hand sanitizer.
  • Don’t touch your eyes, nose, and mouth. This helps keep germs out of your body.

It’s suggested you prepare for the flu season like you would prepare for any emergency where you may be required to stay home for an extended period of time.

If I have an autoimmune related condition should I get the flu shot?

We recommend you visit our FAQ page where we addressed the impact of vaccines upon the immune system. From there we hope you are able to draw your own conclusion as to the safety of the influenza vaccine.

Continue reading “Understanding: Seasonal Flu”

Looking to get the flu shot?

nutrition-2029436_640
Gellinger, Gerhard. “Gellinger.” Gellinger | Pixabay, pixabay.com/en/users/Gellinger-201217/.

Q: I hear this year’s flu season is grim. What is your opinion on whether or not it is safe for CRPS patients to get the flu shot?

A: As we know with CRPS Complex Regional Pain Syndrome, previously known as RSD and Causalgia, the body’s systems are disrupted from their normal function. From this disruption, we live with various afflictions a few being pain, inflammatory response, nausea, vomiting, muscular atrophy and the potential for organ failure for various reasons. According to my research this is because the bodies flight or fight mechanism is stuck in overdrive due to a physical trauma.

Here I will not get into the theories as to why but I will discuss the how. According to research science dictates the injury we sustain triggers the onset of the condition. It is the straw that breaks the camel’s back to coin a phrase. This action as I said causes an overdrive effect where our central nervous system, our autonomic nervous system cause havoc within our bodies. Our immune system also plays a large part in how our central nervous system functions.
It is as vital that we do not disrupt our immune system because of the effect it has on our pain as it does to find methods to cope well with the pain we are in. If we don’t learn to cope our systems are sent into an imbalance which triggers a dysfunction thereby causing us pain. It is a vicious circle one issue feeding into the other.

Consult Your Physician or Health Care Provider. Our intent is NOT to replace any relationship that exists, or should exist, between you and your Medical Provider or Mental Health Provider. You should always seek the advice of your own physician, nurse practitioner, physician’s assistant, Mental Health Provider, or another health care professional regarding any questions or concerns about your specific health situation. We advise you to speak with your own Medical Provider or Mental Health Provider before implementing any suggestions obtained through our Website, Programs, Products and Services including but not limited to exercise, lifestyle, weight loss, food, vitamins or supplements; engaging in an elimination diet, detox or cleanse; meditation or deep breathing exercises; or participating in any other aspect of a weight loss, healthy eating, exercise and/or lifestyle program. You should not disregard professional medical advice or delay seeking professional advice because of information you have read on this website or received from us. You and your clients should not stop taking any medications without speaking to your Medical Provider and/or Mental Health Provider. If you or your clients have or suspect that you or they have a medical problem, you are advised to contact your own Medical Provider or Mental Health Provider promptly.

THE PAIN POSSIBILITIES

Pain Sufferers May Not Find The Relief

Perhaps it’s because of the horrific news of opioid abuse recently, but it seems as if Americans are more seriously considering whether or not to take any kind of prescription medicine to relieve pain, according to a new study.

cervical-2441707_640
Photo Credit: Milius007

In fact, 78 percent of those surveyed in a joint effort by Gallup and Palmer College of Chiropractic said they’d “prefer to try other ways to address their physical pain before they take pain medication.”

What may come as a shock is that even over-the-counter (OTC) and nonsteroidal anti-inflammatory drugs frequently used to treat mild and moderate pain come with risks. Medicine as seemingly benign as aspirin, ibuprofen, acetaminophen and naproxen can trigger adverse effects such as ulcers, bleeding, gastrointestinal problems, and – in rare cases – increased risk of stroke or even kidney damage.

“If over-the-counter medications are used, it should be remembered that just because it’s OTC doesn’t mean it’s completely safe for everyone,” says Velma Wilks, RPh, a practicing registered pharmacist in Lubbock, Texas, who believes people should consider non-pharmacological approaches first.

Underscoring Wilks’ opinion is the fact that one option to both opioids and OTC drugs – drug-free chiropractic care – has grown so popular among those seeking relief from back and neck pain that it’s become something of a movement under the rallying cry of “chiropractic first.”

Highly educated and trained in the structure and function of the human body, doctors of chiropractic use hands-on techniques to help enhance flexibility, muscle strength and range of motion. And most insurance and health plans cover its use.

“One hundred million Americans suffer from chronic pain, and they deserve to know the risks about the OTC medications they’re taking,” says the Foundation for Chiropractic Progress’ Sherry McAllister, DC.

To locate a nearby doctor of chiropractic, visit f4cp.com/findadoctor.

Be Sociable, Share!
Chad. “Copyright Free Content.” Copyright Free Content General Category, Copyrightfreecontent.com, 22 Dec. 2017, http://www.copyrightfreecontent.com/newsusa/pain-sufferers-may-not-find-the-relief/.

Where Do We Go From Here?

THE WHY:

In all of my appointments with doctors during my journey of CRPS discovery, never did a single doctor discussed with me that chemical exposure and/or diet could play a large part in the root cause triggering my flare-ups. Instead, they continued to prescribe me medications known to inhibit the bodies natural ability to heal itself. Yet, I and many others who found we were chasing our tails regarding the medical community, believe in this method of holistic integrated functional medicine because of the changes in our functionality. We will never go back to our old ways because we are only limited by our commitment to clean living.

Let me put this as simply as I possibly can…

“There are no words adequate enough to express the quality of life I have regained. ~LM Proctor”

THE WHEN:

In 2015, I decided the 100% permanent disability rating from one doctor and how I felt physically was unacceptable. As I was surfing the Internet one evening, I happened upon a medical journal or research paper which contained within it a theory I’d not been exposed to before. The premise was that Chronic Regional Pain Syndrome is believed to have an autoimmune etymology.

This started me thinking see I understood what an asthma attack was and had a general understanding of why they happen. I’m a mother and I grasp how fragile a newborn baby’s body is. I was taught to introduce foods one at a time to infants and why. As well as understanding the dangers of chemical exposure to an asthmatic and I went overboard in the eyes of many.

THE WHAT:

First, I started an elimination dietary protocol I didn’t know that was what it was called. I just picked one meat, one vegetable, and one fruit, and drank only water and decaf tea. I started adding one item at a time every week and a half while watching for adverse unwanted symptoms.  Eventually, building myself a dietary  protocol designed for just me. In the end, one very reminiscent of the AIP, Keto, and Mediterranean diets combined. Whole fats, natural sugars, organic and non-gmo as possible. This site, Whole Life Nutrition, appears to be a great site for resources to strat an elimination diet of your own. This process is otherwise known as an Oligoallergenic diet designed to be comprised of very few foods to diagnose whether particular symptoms are the result of an allergic response.

Next, I removed all toxic cleaning agents from my home. I then changed all of my personal care products to unscented and chemically toxic free and my husband began smoking outside, making the effort to wash up after coming back inside.

If anyone thought I’d gone overboard and lost my mind… Well, I was just alright with that. Two years later, the doubters were wowed, not only by the functional improvement I presented with but I incurred a total weight loss of 55 lbs without exercise. That, however, is another story … involving a spinal cord stimulator and the reason why I choose removal of the implant, aka: explantation of the device.

The fact my pain level, on a scale from 1-10, was reduced from a constant 8.5 to a nice constant 4 with minimal flare-ups, was an added bonus. I’ve been able to stop all but three medications out of the nine I had been taking. I further reduced the number of opioids I took by almost two-thirds through the introduction of essential oils such as frankincense and copaiba. Along with organic, nongmo, plants rich in not only vitamins and minerals but cannabinoids as well including but not limited to non-THC containing cannabis and cannabis containing THC. You should understand that the human body has what is called an ‘Endocannabinoid system’ which provides the body with the ability to run smoothly and the addition of plants rich in these properties is very beneficial in oiling the system with CBD’s … so to speak.

THE WHO:

People like you and me searching for answers and an alternative to invasive medical procedures. People looking to get back to the roots of medicine to get to the root of our diseases cause and effect. The very reason for this site and others… to answer the questions of… Who? Who gets it? Who understands it? Who can cure it? Who has managed to find a way to live with it until we can cure it? That’s who.

I recommend you visit the website of renowned CRPS specialist, Dr. Getson, D.O.. or view one of his YouTube videos by >>CLICKING HERE<< I’ve recently been introduced to his theories and they are very much in line with what I have come to find out on my very own. Also, I believe this site, RSD Hope is directly affiliated with Dr. Getson and Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) is non-profit group and another site vetted for quality information. Download a ‘CRPS Fact Sheet’ from the National Institute of Health <<<here>>>

Below you will find PDF’s for direct download from my cloud drive on-line through my Gmail account. I have collected these handouts from around the Internet. The first PDF is a list of chemically safer products, recommended by the Gerson Institute in Mexico, for use around the home and personal care(CLICK HERE). I believe there are other products which are safe to use BUT I find it’s easy to start with a recommendation list of products rather than consume time trying to figure it out on my own, just to get started with.

The institute’s official web portal is at www.Gerson.com. They have lots of information geared towards curing cancer as well as managing autoimmune and other diseases. I firmly believe in integrative functional medicine. Just because I don’t have cancer doesn’t mean this protocol can’t be used to help me. The next PDF is the Neurological Associates Four F’s Diet by H. Hooshmand, M.D. from the book: Chronic Pain: Reflex Sympathetic Dystrophy Prevention and Management and it deals with dietary changes to make based on the assumption you are not diabetic. (CLICK HERE)

Check out the website of Dr. Neil Levin regarding an easy approach to an Elimination Dietary Protocol to heal Leaky Gut. I am not associated in any fashion with the links I have listed here and I do not endorse any items they are trying to sell to you. All supplements need to be plant-based for the body to absorb them and make use of them in the body. I am finding that cost effective brands found ready are actually synthetic and/or sourced from ground rocks. This is actually more harmful to your body than doing without the suppliment in the first place. Watch for an up and coming article regarding finding safe and effective vitamins and supplements or research it yourselves. The three names I know of are Axe Naturals, Megafoods and Garden of life.

IN CLOSING:

This disease is systemic: effecting the vascular, nervous, autonomic, and immune systems and there could be more I cannot remember right now. I’m still learning and this disease is ever evolving through the medical journals at a snail’s pace. The fact that this disease affects four or more systems quantifies it as a dysautonomic condition. Some doctors agree with this statement, some do not. Please visit Dysautonomia International for more information.

WATCH:

Watch for upcoming “how to” videos on how I’ve gone about making some of these lifestyle changes. You can watch my introductory video by >>CLICKING HERE<<. Please look for me on social media through the links I’ve provided on the blog and do leave me a comment, suggestion or criticism, I value the input.

DISCLAIMER:

Please remember: I’m not a doctor nor do I play one on t.v., as well, at the time of the writing of this article I do not work in the medical field. The information I am sharing with you is information which I have collected from various sources such as personal office visits as well as online from qualified medical professionals and other legitimate sources. Understand the FDA and many doctors and medical professional do not agree with me, some might and few do. It is advised that you consult a licensed physician before starting a new dietary, exercise, therapeutic, and/or homeopathic programs and/or protocol care plan changes. Finally, one must remember not everyone will experience the same results, your’s could be better.

May blessings be upon you … and … I pray God heals you indeed.

 

 

 

 

Time Flys

How time flys when you’re not having much fun. Now, don’t get me wrong. We had some adventures when I felt up to it this past month and a half. But the new endeavor of sharing with you my life sorta went on hold. See, we only have so many spoons to use through the course of a day and when it costs you a spoon just to get moving in the morning one tends to ration spoonage.

I’d suppose this is where I insert a random joke about kids throwing silverware away rather than wash it but seriously… Having a handful of energy to accomplish anything and wanting to do more is overwhelming some days. Rest is near impossible to achieve because our rim sleep is disrupted, healing is thereby prolonged, time slips by and people stop calling after you say “no” so many times.

As with anything invisible , sometimes it’s simply hard for others to believe. Blessings be with you…

Facial Pain… An Infection or CRPS Flare-up

Three years ago a dentist attempted to save my jawline by not pull three of my molars that had degraded along the gum-line where previous dentists pried against the remaining tooth for leverage to extract my wisdom teeth because the roots were and probably still are healthy and vital to the formation of the jaw. Yes, as loud as I am I actually have a small mouth.

On Friday, I attempted to schedule an appointment with the dentist to extract the tooth as I was starting to get a toothache but the office was closed. It could wait until Monday to set the appointment. Friday evening rounded the corner and the pain was increased. By Saturday and I couldn’t close my teeth together. It always happens on a Friday after hours! Ugh!

As I went about picking up I found my nose ring I’d had in earlier… As alarm bells rung in my head because of the crusted coating I found growing on my nose ring I decided it had to be an infection, bacterial or fungal but anything growing on sterling silver, in my opinion, is not normal. So in I went to the ER. As I approached I started to recall what my husband told me he witnessed the last time I thought I had an infection that shouldn’t wait till Monday had set in… “As soon as you told them you were on pain management they left the room for over 45 minutes and every person who entered after responded to you as if you were seeking pain medications.” He further said to me “I don’t think I’d ever mention it again and if they try to hand you a script for pain pills refuse it.”

I don’t agree. I think the medical field needs to stop treating pain patients as pill seekers trying to get high. Me personally, I have a sensitivity to natural opioids. That means I take two at the same time or too close together and I itch and vomit. I cannot get high off of them without becoming violently ill yet in my records a doctor actually tried to accuse me of pill seeking behaviors at my monthly pill seeking appointment. Hmmm

I finally meet my new GP, mind you I’ve told every doctor this especially the ones prescribing, I mention this to him and he is the one to tell me I have an allergy to the medication if I ever break out in hives I am out of pain management options via opioid interventions.

Ok back to the ER story… I was scared they were going to send me on my way as a pill seeker rather than a seeker of the problem. I video recorded as best I could but have yet to watch my fears play out. As soon as I feel up to it I think I’ll put out a video on how afraid we are that we won’t be heard and helped or misperceived our intentions because while I was there waiting in the bed for 6 hours I began having muscular ripples and drawing and comforting of my feet and legs. Cannot jump up every time one set in like I do at home it will freak people out so I sit there rubbing, begging them to stop, and crying from the pain, humility, fear…. We try so hard to either be invisible or blend in and when you’re a spectacle, a medical enigma it’s emotionally draining.

After clarifying I was fearful of the same treatment again, that I tell them I’m on pain management because if the pain pills aren’t managing the discomfort more pills won’t. I wanted help understanding what was wrong. I knew it had to be an infection of some sort … bacterial, fungal … something.

The conclusion: A CT Scan revealed inflammation, no pooling of fluid, nothing but swelling and concentrated at the upper right quadrant of my mouth. Diagnosis: gingivitis. The remedy suggested prescription mouthwash currently not filled. However, one hour after the use of Afrin nasal spray the pain began to diminish almost immediately in comparison, 24 hours later and I was able to eat for the first time in almost three days.

Gingivitis? I don’t think so. The CRPS inflammation attack of the face is how I think it should actually read but who am I but the patient who lives with this dysfunction of the bodies primary and secondary systems. Whats next my heart?

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