I’m on a journey of discovery, in no way shape or form am I claiming to be or have been any type of specialist or am I a medical doctor. Yes, I have some basic therapy training and some basic nursing training.
However, that’s it, everything else I’ve discovered from research. The same kind of thing that you too can do. All you’ve got to do is ask dr. Google, pull up the research, read through it and if you don’t understand it go ask questions. Either Google it and read the definitions and the explanations of things or go online and start to talk to people. Then with all the information and opinions in hand, talk to your doctor, ask questions that create a base for a dialogue to make a decision based upon not just the opinion of others or the opinion of your doctor but the facts.
That said, my doctor tells me I’m the specialist here because I know more about CRPS than he does, as such my research continues. Because I’ve plateaued reaching a point in helping myself through diet and chemical exposure that it is now just a balancing act at this point. There’s more though I know it, there has to be because I’m tenacious, to say the least, and because of times like this morning.
This morning, I made a post in a support group online. It was generally one of my kind of random posts that I put up to spark conversation, a little bit of information, a little bit of opinion, a question or two to hopefully get people talking more about what they do than how much they are hurting… and it worked.
I ended up in a conversation with the type of person I’d always wondered about, wondered if these people existed. The kind of people that have lived with CRPS and suffered with it for an extended period of time, who changed their lifestyle and found the same, if not improved, function. That’s the kind of people I’m talking about and yes, Virginia, they do exist.
I am so glad that it happened because it gave me a direction to which point I have now got some links I thought I might share with you. This lady said that in the last 11 months the CRPS that she has had for 20-plus years is now at a level of improvement she never imagined possible. Which means to me that there’s even more possible than I’m experiencing now.
I don’t have any links to her or anything that she is associated with however I did get a tidbit of information in that she focuses her efforts with Chinese-based herbals and treatments. As such the sleuth that I am have come up with a few links that I’m researching and looking into myself so here they are…