I’m tired today. I haven’t slept well lately, my skin feels like I have rolled in stinging nettle and I learned today the optimism with which I face my disease is basically a situation of being up-the-creek without a paddle all the while whistling dixie for fun. I love CR(a)PS! This was some mind-bending data to digest. However, I cannot let this information dissuade me from trudging forward. I cannot let it stop me from living, appreciating what I can now and accepting that for whatever reason I have a condition that is not for those who lack courage.
This is in no way me trying to one-up anyone. We all have our own measures with which we use to measure the world around us. Though the reality of what I, and many others, face is nothing short of an unimaginable horrific journey into the depths of hell on a “One Way” ticket. I have a neuropathic condition which causes pain as a result of the disorder that is characterized by:
- severe pain beyond the area of injury;
- autonomic dysregulation;
- neuropathic edema;
- a movement disorder, atrophy, and dystrophy.
Mine was caused by a bruise on the knee, a soft-tissue injury followed by a surgical procedure. The disease is divided into Type I where no nerve lesion is identified and Type II has identifiable nerve damaged. In addition to the peripheral manifestations, there are many internal medical complications whose etiology is often not discussed such as where CRPS affects the systems of: cognition; constitutional, cardiac, and respiratory complications; systemic autonomic dysregulation; neurogenic edema; musculoskeletal, endocrine and dermatological manifestations; as well as urological and gastrointestinal function.
Not something I look forward to but a reality of my future none the less.
N.a (6 Oct. 2016.). . Rsds.org. Retrieved from http://rsds.org/wp-content/uploads/2015/02/Systemic-Complications-of-CRPS.pdf